If you're troubled...

Halos lahat ng aspeto sa buhay, nagka-problema na ko.  pamilya, anak, asawa (super problem to the maximum level), kalusugan.  i will not deny that i have done some stupid things that i thought will make those problems go away.

i've been crying for more than half of my life, I came to a point that I'm not sure anymore if there is a God.

Then I realized, if there is no God, then everything is on me.  I have to make do of what I have.  I made a checklist in my head.  Asked myself who and what I was living for.  I called this list, my reasons for breathing.  Topping that list were my children.  And that's enough.  I could've stopped there.  But, everyday, I see things that makes it to the list.  Small things, like seeing a butterfly on the porch perched in a flower pot.

Now, I admit, I am a little scared of dying.  Not because of myself.  I am afraid for the people I will be leaving behind.  I know they will not survive that.  So, even if I felt like giving up, I couldn't.  I've been in and out of the hospital too much, the lab people are sick of me.  But I'm still here.  I still am breathing.  Because I do not live one day at a time anymore.  I live one breath at a time. 

I do think of the future.  I have to, because of Dale (my son who has autism).  The days that I have left here breathing, I would like to dedicate on keeping my family together.  I stopped being angry with my husband's failures or "kakulangan," as my mother always says.  Because I accepted the fact that I, too, have them.  I just had to open my eyes and realize them.

I am teaching my children to love one another, because in the end, that's all they will have left--each other.

I study not because I have to.  it's because I want to.  It makes me feel younger.  Younger means healthier.  I think my parents know this, because even if they sometimes question my decision to continue studying, they do not ask me to stop.

I take my medicines regularly, not because I want to, but because I have to.  If these expensive little pills will somehow, miraculously, give me more breaths to take, then I will take them.  As I said, not because I want to.... coz If it were me alone, I'm ready to die.  But because I have to, coz everything is not about me.

Pain is just a reminder.  Whatever you forgot, pain is there like a ribbon round your finger.

If you're crying because of pain, let them flow.  There is no shame in crying.  But, after you've exhausted yourself enough, stop.   Then face your problems.  Tears will not do you any good except for one thing. It was made to lubricate the eyes... to clean them... like windshield wipers... for you to see clearly again.

Sometimes, we all need a brick wall to bang our heads with, and that's ok.  Sometimes, you may want to die, and that's ok, too.  We're all human, anyway.  Just remember, you are alive for a reason.  Find that reason.  I don't think you need to look far.

Have faith.  Even if we don't see God, it doesn't mean He is not there.  Even if it seems like He doesn't answer your prayers, pray still.  He knows what He's doing.  After all, He is God.

I will not tell you to cheer up.  I will not tell you that I understand your pain.  I am not you.  I will also not tell you that there are people who are experiencing pain worse than yours.  Again, they are not you.

However, you are you.  You know yourself more than anyone.  Go tell yourself what you need to do.  Be brave, little one.

General Questions?

The reason I put up this blog is to keep memories of Dale, and to help other parents like me who have special children.  If you wish to know more about me, Dale, and our journey, please feel free to post them as comments below.

Thank you and have a stress-free day! :)

Update

I have been procrastinating for a long while.  I just didn't have the energy to post since my kidney transplant and then the rejection.  Anyhow, I managed to browse through almost everything on my blog today.

There are numerous comments that I needed to address and delete, as well.  I have to remember to change my settings to require comment moderation.  I can now easily blog, because of my iPhone, but that's another story.

So, what I did was....

• remove all spam comments
• update the therapy centers list
• put up a post where you can post your questions via comments, I will answer them to the best of my ability; if not, I ask my readers to please answer them for me.
• put up a post about advertising

I am aiming a lot for my two blogs (the other is at pinoynanay.blogspot.com).  One aim is to collect revenues from them since I am now an at-home mother because of my illness.

By the way, if you wish to know more about me and being sick, just click on my other blogsite.

Thank you for patronizing this blog and praying for Dale!

Have a stress-free day!

not until Dale kisses me first

Early this year, we went to my son, Dale's, pediatrician for treatment of his cough and colds. We went to a new one, because his former pediatrician went abroad. This new doctor told us, in all honesty, that we have to take Dale to a developmental psychologist. She suspects something is wrong with him.

I thought, WHO IS THIS DOCTOR? WHY IN THE WORLD WILL THERE BE SOMETHING WRONG WITH MY SON? But of course, I just thought that. Being brought up by my parents as a respectful person, I just listened to her.

When I got to the office, I don't know why, I just turned on the PC, opened the browser, and searched for a topic—AUTISM. I typed in the search field. I picked a site, and went on reading. I read almost every topic on that website, and feeling like a zombie, reached for the office's wireless and called my husband. Upon hearing his voice, I cracked. I told him, my son has autism.

“How did you know? Calm down. Where did you read it from? No, it can't possibly. Stop crying. We're not sure of that.” Those were his words. I just passed him the information from what I have read, the symptoms and possible causes. Saying it in barely recognizable phrases because I could not control myself. I have never cried as hysterically as this before. I thought everything I have achieved in life, even if it was only bearing three wonderful children have been trashed.

I kept on asking myself, WHY MY SON? HAVE I DONE SOMETHING GRAVELY WRONG? HAVE I NOT PRAYED EVERYDAY OF MY LIFE? Everyday since then, I have silently hoped that I was wrong. I told my cousin, and she told her mom, who in turn gave me the contact number of this SPED teacher. I consulted her and she recommended Dra. Alexis Reyes of Makati Medical Center.

Since then, a lot of people told us that they didn't think that Dale has autism. They think that maybe he's just not disciplined. They kept assuring me that there were normal kids who are just delayed in development like speech. But it wasn't just his inability to talk. It's his eye contact, it's his strange behavior, his failure to recognize danger, and his inability to listen and look at me when I call his name. It was everything.

Whatever consolations they point out, I did not feel any better, because deep inside me, I have accepted the fact that he really has autism. The signs were all there. I don't know if that would make me a bad mother, but it helped me now.

I then set up an appointment with Dra. Reyes which was June, but was then rescheduled to March of next year. Then just two days ago, her secretary called and said there was a cancellation and that the doctor will see us yesterday.

It was exactly 2:00 P.M. when the doctor went out of the office and called us. She asked for Dale's history, and assessed him for 45 minutes, played with him and made him sit still. We were having difficulties then because Dale saw that the doctor has Pringles, and he kept on reaching for it. He started to cry then and would not stop crying. But when the doctor asked him to do something like play with a puzzle, he completes the puzzle while crying. He stacked thirteen blocks on top of another, making sure the blocks were all aligned before he placed another one (Later on the doctor told us that it was a good sign, most kids she assessed could only stack 4 blocks).

After the assessment the doctor asked me to sit down with my husband and she explained things to us. I found myself asking her:

"So, what are you saying? Is it positive that my son is autistic?"

And her reply was the most hurtful 3-word sentence I have ever heard:

"Yes, he is."

I did not cry. I did not shed a single tear. I just listened to what she was saying.

She gave us information on how to deal with this and referred us to the CENTER FOR AUTISM AND RELATED DISORDERS. She just gave us a slip of paper as a referral when we go to CARD, stating that my son has Autism Spectrum Disorder.

When it was over, my husband who rarely carries him, scooped him up, hugged him and carried him until we got to the lobby. He kissed him and hugged him all that time. He got the car from the parking lot while we waited for him in the lobby. It was raining a bit, but my husband was taking quite a long time getting the car, I noticed. When he finally came by, we got in the car, I saw that my husband was crying. He cried while he was driving. I did not.

When I told my mother that night, I saw her tears building up in her eyes. Mine did not.

You could ask me why I did not cry, and my answer will always be this:

I really believe that everything that happens in our lives has this certain purpose or reason. The problem is, what is it? And how do we take it to our advantage?

I only know then and now that I LOVE MY SON. I love him so deeply, that I would give him everything, and sacrifice everything just to give him a normal life even if it was just at a certain point.

And I believe that if my husband cries, my mom cries, the whole family, and everyone else cries, then what would these tears do for my son? Will he get better? Will these tears be some sort of a miracle for my son? I did not think so. What I thought was, I have to be strong for my son. I have to keep strong faith that HE WILL get better. Because I'm done with crying. And it did not do me nor my son any good.

So, this morning, I placed Dale on his younger brother's crib. He hates that. He kept on asking me in hand gestures to bring him down. I did not. Not until he kisses me first, I told him. Until his dad came down and wanted to get him out because he pities him, I told him NO.

NOT UNTIL DALE KISSES ME FIRST, I told them.

Dale would have to exhaust himself from crying but I WILL NOT bring him down. Sadist? No. It was because I love him. He has to try to listen to me and understand. After a painful (for me and his Dad) 2 minutes, he finally kissed me. FIVE TIMES.

Now, then, I could have cried. Because, for the first time in months, I am now SURE that my son will be okay.

About

moments in the life of
Arolf Delano Delos Santos-Santos
currently 9 (turning 10) years of age diagnosed as having
Asperger's Syndrome
as told by his mother, Reich.

Possibility comprises that which one can achieve,
or alternatively one's potential.

...living life one breath at a time...